Okay, I admit it. I’m straight up terrified of Monday. Monday, Sam starts back to school. For the first time in four years, only now he’s going back to a new school, with people I don’t know and trust even less. With a zillion other kids – and with the added problem of being LEGALLY …
Category Archive: Uncategorized
Jul 25
Summer Updates
So much happening these days…. Jessie has been tentatively diagnosed with something called POTS (Postural Orthostatic Tachycardia Syndrome ). She’s started getting headaches every day, some really bad, some not so bad, but accompanied with dizziness and lightheadedness. She’s only passed out once, but once is enough, really. At least, as far as I’m concerned. She’s …
Jul 01
It’s an odd sort of summer
I still feel like it hasn’t really started yet. We had Glennys down for the first week, and then… I’m drawing a total blank on what we did the following week. Marc is off all this week, and it still feels like we’re existing in this odd holding pattern. Waiting. I know that the end …
Jun 13
Taking it for granted
I wonder if I’ll ever reach that point again. When I have three kids, all in school, all proceeding normally. Because today, for the first time in forever, I picked all three kids up from school and stopped for cocoa and the entire drive home, with everyone giggling and arguing and discussing summer plans… it …
May 08
The Missing Three Years
I know I shouldn’t feel this way. I know I should be grateful I still have a Sammy. I should be focusing on the fact that he’s survived the past three years, gone through the trauma and the loss and emerged stronger and more emotionally able to handle whatever life throws his way. I know …
May 07
Repost from a few years ago
I wrote this originally when Sam was in first grade, or second. Before third grade, when everything went downhill, and school became terrifying and impossible for my poor boy. Sam has started back at school, on a very limited schedule, and again, I have to thank the teachers, staff and administration who make it possible. …
Apr 26
Back to School – or the post I was never planning to write
Sam just wrapped up his first week back at school (with a day off, as his teacher is out sick today). But for four days this week, he got up, got dressed and went in for ELA, math and braille. It’s a small group classroom (or resource room, or special ed room, not sure what …
Apr 11
Thoughts on a Three Year Anniversary
Marc told me once that he thought losing a child is the worst thing. Losing a child slowly is the second, and watching your child suffer in pain is the third worst thing that any parent can go through. Sam wasn’t ever near death, but the pain and the trauma is something that I don’t …
Mar 31
How I Am Surviving Sam’s IEP Process
Quick disclaimer – I don’t recommend this path. It’s counter to everything I think the IEP process should be, and it’s exhausting on every level. But it does work – because while I’m not done, I’m slowly getting everything we wanted for Sam for next year. Okay – here it is. I just cry. The …
Mar 25
The Blind Kid
Purim has never been one of my favorite holidays. I was first introduced to it as a new mom, with a tiny baby girl who was terrified of the rabbi dressed up like a gorilla. My subsequent kids were panicked by the megillah reading, with the shouts and noisemakers and then the inevitable arguing over …
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