It was a stellar day all the way around. Jessie has her first semi-formal coming up, and today was dress shopping day. On a good day, Jessie and I don’t like to shop, and shopping with the intent to purchase is always a challenge. I headed to the mall with my mother and both girls. …
Category Archive: Uncategorized
May 12
Making the impossible happen
So much of Sam’s case is improbable. Kids don’t get psuedo tumors. Pseudo tumors are never this aggressive. They always respond to medication. The medication never kills off taste buds for months and months. And perhaps the most challenging at the moment – kids who are legally blind are never completely homeschooled. They’re always on …
May 04
Spring
I love this time of year. I love living in this neighborhood during the spring, summer and fall. It’s just winter when everything falls apart. But for now, the sky is blue, everyone’s lawn is filled with flowers and the trees are all loaded with leaves. Marc doesn’t want Julianna riding a bike. If she …
May 02
Notes from a spring weekend
It was Julianna’s birthday this weekend. Seven is undeniably a kid. There’s no way, not really, to pretend that she’s a baby any more. Friday night we went out to dinner. Lilli and Julie had discussed it and decided on the chinese buffet. It’s the restaurant that we’ve been to the most, over the years. …
Apr 26
Julianna Ruth
At age seven, she’s tall for her age, and so heartbreakingly beautiful that sometimes I just pause and stare at her for a while. She’s got huge brown eyes, perfect skin, and hair that she’s adamant she won’t ever, ever get cut. She’s above grade level in every single subject. Except for music, oddly enough. …
Apr 20
April vacation confessions
So we’re doing April vacation this week. This is kind of a weird week for me. Jessie was home sick all last week with a virus that wrapped up with a sinus infection. So she’s spending most of the week in various states of agony, trying to figure out math, and prepping for her …
Apr 08
First Passover Seder
Progress is measured in small steps. I’ve said that over and over again this past year, mainly to console myself when the steps are so small, and the journey back to where he was seems so long. But every now and again, he suddenly takes a leap forward, and it’s such a shock. Every year, …
Apr 07
Just like having another baby
It’s no secret that I wanted more children. Not enough to go off birth control and get pregnant, at least not yet. And at 43, the likelihood that it’s going to happen now is limited. With Jessie going into high school, Julianna moving into second grade, and homeschooling Sam with his vision issues… I don’t …
Apr 04
April Updates
I haven’t been blogging much of late. No real reason, sometimes I just drift away from blogging and then wander my way back. Marc is doing well at his new job. It isn’t new anymore now, he’s been at it since January. It’s starting to feel normal. He’s not home much at all during the …
Mar 21
Saturday night
Saturday night was one of those nights that I’ll look back on, years from now, and get a little weepy because it was just that perfect. Actually, this whole weekend was kind of perfect. We’ve always had Shabbat dinners with Lilli and Sarah. And they’re EVENTS. I make a big dinner, with chicken and a …
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