Look, there are going to be good days and bad days. I know that. Today is a bad day. I fought with Sam for more than an hour about taking his medication. I threw a phone and a doll carriage, he swore, I swore back at him. He cried, I cried. We were both …
Category Archive: Uncategorized
May 12
No sleep
I read somewhere (probably when I was seriously sleep deprived, so it may not be entirely accurate) that the human body could go without sleep for one night and it doesn’t make much of a difference. I find enormous comfort in that. And because I’m a huge believer in the placebo effect – in that, …
May 11
The hospital
We found out last night that Sam needs surgery. Actually, we found out two days ago, but it was supposed to be done sometime next week. Last night, we found out it was today. It’s just Sam and I at the hospital. Marc needs to be home, he needs to work, and we both agree …
May 09
Options
We have options. None of them are good. We had the doctor’s appointment today. Five hours worth of doctor’s appointment, adding in commuting time back and forth to Boston. It might just be that his vision is permanently gone in his right eye. His left eye is basically 20/30 with incredible nearsightedness. He can see …
May 06
Sweetness
There are a lot of up and downs these days. One of the bigger challenges has been Sam’s sense of taste. Sam was an eater – he was a kid who LOVED to eat. Loved it. He had a huge appetite, and it was an incredible source of pleasure for him. Not just pleasure – …
May 04
Deschooling, stealth schooling, unschooling, oh my…
I’m a homeschooler. So to speak. I’m homeschooling in theory – in reality, I’m reading Harry Potter and the Prisoner of Azkaban out loud and strongly suggesting that he watch documentaries. We’re in a weird place right now. Not just with his physical and emotional recovery, but also with his academic recovery. He’s physically recovering, …
May 03
Slight improvements
The improvements are there – they are. Given where we were a month ago, he’s measurably better. But day to day, it’s a lot tougher to track. His eyes are tracking substantially better. I’m staring closely at him all the time, and I think those are all the way better. His vision is improving, slowly, …
May 02
God bless the 3:00 cup of coffee
My name is Melissa, and I’m addicted to coffee. I’ve come to grips with it, and am no longer ashamed. I don’t smoke, have never tried drugs, drink so rarely that it’s more accurate to say that I don’t drink. But I have a raging coffee addiction and I’m proud. I’m even perpetuating it into …
May 02
The drama of it all
Having a 13 year old is no joke. Having any kid of any age isn’t easy, but there’s a special little challenge that goes along with having a 13 year old daughter. She’s brave and brilliant, gorgeous and funny and lovely. Also bitingly sarcastic, moody as hell, and not at all shy about expressing it. …
May 01
Anger
I’m angry. I’m just so… mad. It’s getting a little better, I guess, but I’ve spent most of the past week absolutely furious. I keep telling myself that it’s normal, it’s only to be expected. Anger is okay – it’s just an emotion I have to wait out. The past two months have been hellish, …
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