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Aug 27

Longest Week Ever

I’m not even sure why it’s feeling like I’m stuck on a treadmill that won’t ever stop. It’s finally Thursday, and this week has taken several months to get through. In part it’s just that we did a LOT this week. I think. All the days blur together to some extent, between covid-19, this never ending summer vacation, etc.

Monday we started Sam’s immunotherapy. Because he’s allergic to all the things – he gets three separate shots once a week. One for cats and dogs, one for all the trees, and one for weeds and grasses. Tuesday, we had his first vestibular therapy appointment. After a summer spent ruling everything out (including a CT scan, an MRI, an upper endoscopy), we’ve concluded that his little brain is just fine, but because he’s still so dizzy, this seems to be the best way to deal with it. The physical therapist said that it’s probably a combination of a whole bunch of things – some of it is probably stress related, as it started pretty soon after the world went crazy in April, with the shutdowns all over the place, both the girls and Marc suddenly home full time. Some of it is probably caused by his vision – he has a neck tilt because one eye is substantially better than the other, and he gets off-balance really easily. His neck muscles are very tight, and the muscle tightness could be compressing or pressing on nerves that could cause the dizziness. His core isn’t that strong either, which means that he has to work harder to get balanced. In addition to weekly shots, we’re also doing weekly physical therapy to improve his balance and ability to deal with the dizziness.

Wednesday, we went to the beach. Jessie wanted to see the sunrise over the beach, so we woke up at quarter of three and picked up my mother and headed to the ocean. It was gorgeous, so much prettier than I can describe, but Jessie was grumpy the whole time, and the more grumpy she got, the more anxious Julie got. The more anxious Julie got, the more she irritated Jessie, who would then get grumpier. After the beach, we stumbled into a three hour wait for a covid-19 test. My mother wanted to be tested to be able to go camping (because you have to provide a negative test within the last 7 days in order to enter ME, I guess), but what we thought would be quick and easy lasted an easy three hours.

Plus I’ve had this headache that just WILL NOT go away. I think it’s mostly hormonal, because my period is getting sketchy and tough to predict, and my headaches have always gone hand in hand with my cycle. I think me going thru menopause at the same time that Julie is prepping to get her period is a good example of why being a woman sucks sometimes.

Marc’s working his butt off – starting each day around seven or so, and ending 12 hours later, roughly. He’s stuck in a weird place too – working all the time, two D&D games each weekend day, and trying to cram in gym sessions when he’s not too exhausted to attempt it. Working from home is both a blessing and a curse, I guess. He’s got four or five, sometimes six audits a day, but there’s no downtime. He’s just working all the time, relentlessly.

And me… I’m just here. This is my last week before school starts for Sam. Julie’s homeschooling, and I’m going to start her on that towards the end of next week, and Jessie starts on September 15. I feel like this is my last week before things get really crazy.

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